Fundraisers scheduled, Go Fund Me established for baby with rare genetic disorder

Three fundraisers are scheduled and Go Fund Me page established to help a baby with a rare genetic disorder.

On February 24th, at 8 days old Amias had to go to Children's Mercy in Kansas City for some tests. They had to wait up there for the results and he was diagnosed with Severe Combined Immunodeficiency(SCID) aka Bubble Boy Disease and immediately admitted. At this time we are still looking at different treatment options and there is a possibility he may be transferred out of state.

SCID is a rare genetic disorder that affects the development of T cells and B cells in the blood and is caused by genetic mutations. His T cell count is ZERO and B cells count was almost as low which means he virtually has no Immune system and must remain in strict quarantine. 

Something as simple as the common cold can be life threatening for him and he will spend months, possibly a couple years, in the hospital without going home. He then will periodically need to go back to the place of treatment for checkups and testing. This all depends on how well treatment goes for him.


He has a 5 year old cousin that also has the same condition and received a trial treatment In Memphis that was very successful for him. but unfortunately, the trial has ended.